Dear Fellow DM Warrior Caregivers,
This is Nathan and Samantha, your friendly MDF Caregivers Facebook Group moderators! We understand the feelings that many of you have had and are having while caring for loved ones affected by Myotonic Dystrophy, because we are DM caregivers, too. There are many local support groups for those who are affected by DM, but there is not a whole lot out there exclusively for those of us who are caregivers.
UNTIL NOW! The Myotonic Dystrophy Foundation has created a Facebook Group with us in mind. The Caregivers Group was created by MDF and is a safe place for us caregivers to talk to others and communicate about situations we are dealing with day to day. This is a group that is growing as we are currently at over 500 members. We are exclusively for caregivers, so there are preliminary questions that must be answered to join this group. This helps us to weed out spam and those that don't belong in this exclusive group!
This group allows us all to get a little closer and talk to others who are in similar positions. We can ask for advice whenever we need and wherever we are. We are all here to help each other get through this life and we want to make sure we get the support necessary to give our loved ones who are affected by DM the best possible outcome and keep our own mental and physical health in check.
Please use the link above to access the Facebook Caregivers Group directly and make sure to answer the questions for our moderating team to review. If you do not have Facebook but would like to chat with someone, please reach out to MDF at info@myotonic.org and they can get you in touch with us.
Thank you for your time and consideration in joining this great group of individuals who are all here to help each other.
Nathan Beucler & Samantha Welsh
MDF Caregivers Group Moderators