DM Community Reunites at 2022 MDF Annual Conference

The 2022 MDF Annual Conference - sometimes called the “family reunion” - took place from Friday, September 9th through Saturday, September 10th, 2022, at Paradise Point in San Diego, CA. With over 625 registrants, and hundreds of participants in-person & online - joining from 39 US States and 14 countries - we are thrilled that so many of our incredible community members and professionals could once again unite to advance the MDF mission of Community, Care, and a Cure!

This year's program included 23 educational sessions exploring research, drug development, symptom management, and other critical topics for DM families, plus opportunities for formal and informal networking and fun. Over 184 Conference first-timers from across the country attended our First Timers’ Tea to connect with other families new to the community, board members and support group facilitators. Attendee feedback on the impact of gathering in person was overwhelmingly positive, and further solidifies the MDF Annual Conference as the crown jewel of MDF events!

Congratulations to Our Award & Raffle Winners

Community Awards

MDF is thrilled to congratulate and honor our three award winners for their uncontested commitment and service to the myotonic dystrophy community:

  • Emily Jones
    4th Annual Kayla Vittek Memorial Award for Outstanding Community Advocate, presented by Lisa Harvey-Duren
  • Luke Bolt
    Above & Beyond Award, presented by MDF's CEO, Tanya Stevenson, EdD, MPH
  • Tetsuo "Tee" Ashizawa, MD
    Lifetime Achievement Award, presented by Larry Lord & Darren Monckton, PhD

Raffle Winners

Thank you to everyone who participated in the 2022 MDF Annual Conference Raffle! Your support helps funds our critically important work on behalf of individuals and families living with myotonic dystrophy. Congratulations to the raffle winners!

  • Naomi Scarberrry, Amazon Gift Card
  • Mary Jane Toolson, Amazon Gift Card
  • Richard Weston, iPad
  • Merrily Miller, Gold & Tourmaline Necklace
  • Tammy Reid, Mammoth Lakes Vacation

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