Meet the Team

Finding a treatment or cure for myotonic dystrophy can't happen without uniquely qualified individuals who are dedicated to the cause. The exceptional people we call on each day are what keep us moving forward towards treatments.

Board of Directors

The Myotonic Dystrophy Foundation's Board of Directors is comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.

Scientific Advisory Committee

The Myotonic Dystrophy Foundation's Scientific Advisory Committee is a group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference. 

Staff & Interns

The Myotonic Dystrophy Foundation's staff leads the day-to-day operations of our organization, and works with the board to set and execute our strategic agenda.

Support Group Facilitators

We’re thrilled that so many of you have found each other through the Foundation and are building support groups. We would like to specially thank our Support Group Facilitators for donating their time and energy to create these support opportunities.

Volunteer & Career Opportunities

MDF is growing! Help ensure DM families all across the globe are receiving the resources and support they need. The foundation is accepting applications for multiple staff positions, intership opportunities, and special projects.

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