Welcome to the Myotonic Dystrophy Foundation Press Room
Here we share information, news and reports about advances in research, treatments and the search for a cure for myotonic dystrophy (DM).
Myotonic Dystrophy News
Respiratory Care Recommendations for Myotonic Dystrophy Patients During the COVID-19 Pandemic
Myotonic Dystrophy Foundation Publishes Clinical Care Recommendations for Cardiologists
2020 Congressional Leadership Award & Advocacy Update
Announcing 2020 Myotonic Dystrophy Foundation Fellows
Media Contact
Kleed Cumming
Phone: 415-800-7777
Email: info@myotonic.org
Meet Our Board
Learn about the volunteer leaders from private and government sectors, many of whom have families impacted by the disease.
Meet Our Scientific Advisory Committee
Our scientific advisors include leading myotonic dystrophy specialists and researchers from academic, clinical, and government organizations.