Rare Disease Day 2020

Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It was launched in 2008 by EURODIS and takes place on the last day of February each year in more than 65 nations. The U.S. program is led by NORD.

Join us to make myotonic dystrophy one of the most prominent disease voices raised this month! MDF is raising awareness for myotonic dystrophy throughout the month of February with special programs and advocacy opportunities.

Find Rare Disese Day events across the globe on the official RDD website.

Learn About MDF's Rare Disease Day Programs

• Advocate for Myotonic Dystrophy to Increase Research Funding
• Participate in a Clinical Trial
• Join the Myotonic Dystrophy Family Registry
• Attend a Rare Disease Day Event:
  • Mar. 1 - Oakland, CA, Rare Disease Day at the Chabot Space & Science Center
  • Mar. 1 - Columbus, OH, Topgolf Tournament for MDF
  • Find more events on the official RDD website!

Questions?

For more information about MDF and Rare Disease Day, please contact MDF's Program Director, Michael Knaapen, at michael.knaapen@myotonic.org or by phone at 415-800-7777.