Rare Disease Month Advocacy Workshop
Monday, February 27th
12:00 PM - 1:00 PM PST
Join us for our annual Rare Disease Day Advocacy Workshop for everyone in the myotonic dystrophy community to learn more about our advocacy priorities and how you can help increase federal funding for myotonic dystrophy research. Click here to register!
Did you know that Myotonic Dystrophy Foundation volunteer advocates across the country have helped secure $17 million in new DM research funding over the past 5 years? These funds are helping researchers unlock the secrets of DM and is helping accelerate the development of new treatments and a cure. We have an opportunity to significantly increase federal dollars for DM research, but we need your help. Please join MDF for our annual Rare Disease Day grassroots advocacy webinar where we’ll discuss how MDF advocates accomplished this amazing goal and how you can play a role in our success by urging Congress to continue to fund DM research as part of the Peer Reviewed Medical Research Program (PRMRP).
Without your voice, Congress may decide to stop funding DM research as part of this critical program. Click here to register!