Social Media Link Archive

Find all the archived links metioned in our Instagram posts below:

2021

Community Logo Vote - International Myotonic Dystrophy Awareness Day

Watch the Recording! Meet the DM Drug Developers: Biogen & Ionis Pharmaceuticals

Join the May Movement Challenge 2021

Spring Update from MDF’s CEO

Watch the Recording! Ask-the-Expert: Gastrointestinal Tract (GI)

Welcome Mike Knaapen, MDF's New Program Director!

International Myotonic Dystrophy Awareness Day - Logo Design Contest

Research Survey - Medicine packaging configuration and flavor profile preferences

Watch the Recording! - Meet the DM Drug Developers: Expansion Therapeutics

My Dispatch: DM News for the Myotonic Dystrophy Community - March 2021

Thank You Clare May! - MDF Support Group Facilitator

Watch "Ask-the-Expert: Respiratory Issues & DM"

Share Your Thoughts on the Future of MDF - Enter for a chance at a $100 Gift Card!

Research Survey - Medicine packaging configuration and flavor profile preferences

Webinar - Ask-the-Expert: Respiratory Issues & DM

International Myotonic Dystrophy Awareness Day - September 15th

International Myotonic Dystrophy Awareness Day - Logo Design Contest

A Journey with Movement & Exercise - Abilities Virtual Experience

Webinar - Meet the DM Drug Developers: AMO Pharma

Webinar - Ask-the-Expert: Exercise & Movement

MyDispatch - News for the DM Community - February 2021

DM1 Prevalence Study Published and Available

Caregiver Virtual Support Group Meeting - Feb 2021

Webinar - Meet the DM Drug Developers: Dyne Therapeutics

Webinar - MDF Advocate Training - Feb 2021

MDF 2020 Above & Beyond Award: Angie Wiggans

Webinar - Ask-the-Expert Series

Webinar - Meet the DM Drug Developers

My Dispatch: News for the DM Community - January 2021

MDF is Hiring! - Program Director

mRNA Vaccines with Dr. John D. Lueck via SF Quarantine

Positive Thinking - Mayo Clinic

Resource - Myotonic Dystrophy: Find a Doctor / Specialist

Genetic Treatment Plus Exercise Reverses Fatigue in Mice with Muscle Wasting Disease

2020

Tom McPeek: Staying Positive

Year End Message from Our CEO

Meet the DM Drug Developers: AMO Pharma

COVID-19 Vaccines and the DM Community

Webinar - DM Strength Training with Rachel Kahn (Part 4 of 4)

MDF Grassroots Fundraising

Webinar - DM Strength Training with Rachel Kahn (Part 3 of 4)

Donate Towards Myotonic Dystrophy Care and a Cure

Webinar - DM Strength Training with Rachel Kahn (Part 2 of 4)

Get Ready for #GivingTuesday on December 1st!

Webinar - DM Strength Training with Rachel Kahn (Part 1 of 4)

Inspector General Warns About New Social Security Benefit Suspension Scam

Resource - Upcoming Virtual Support Groups

My Dispatch: News for the DM Community - November 2020

#SocksOnChallenge

MyDispatch - DM News for the Myotonic Dystrophy Community!

Session Recordings from the MDF 2020 Virtual Conference!

Ingraham Family Story - How a Couple that Dreamed of Travel Found a Way Around DM

Myotonic Dystrophy Grant Opportunities

Webinar - Digital Academy - DM Video Catalog

What does the Myotonic Dystrophy Foundation Mean to You?

Community Advocate Participates in 3rd PRMRP Review

Resource - The Guide for Adults Affected by Juvenile-onset Myotonic Dystrophy and their Caregivers

Learn about MDF's incredible Support Group Facilitators

Myotonic Dystrophy Foundation Brand Refresh

Resource - Anesthesia Quick Reference Guide - Share it with your clinician and anesthesiologist!

50 Things to Do at Home in the Summer (That Don’t Require Any Outdoor Space)

Sign Up for Emails! - Monthly Dispatch Newsletter

DM Community Happy Hour - BYOB!

What does the Myotonic Dystrophy Foundation mean to you?

Get your story featured on Myotonic.org!

Random Trivia Generator

Resource - Care Guidelines for Speech and Language Pathologists Treating Adults and Children with Myotonic Dystrophy

Bouquets to Art - de Young Museum

Resource - Exercise Guide for People Living with Myotonic Dystrophy

MDF Grassroots Fundraising Toolbox

My Dispatch: News for the Myotonic Dystrophy Community - July 2020

Care for Caregivers: Skills for Resilience Through Meditation & Mindful Movement

Webinar - An Introduction to Resources and Programs for Myotonic Dystrophy

Join the Myotonic Dystrophy Family Registry

Myotonic Dystrophy Drug Development Pipeline - Ben Porter at Newcastle University

PRMRP: Advocate for Myotonic Dystrophy Research Funding!

A Mother's Story - Elizabeth Florence

Healthy Recipes - American Heart Association

Webinar - Friday Afternoon Webinar Recordings

Five Ways to View Coverage of the Coronavirus - American Psychological Association

Resource - Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy

Overnight oats 4 ways - Kaiser

Resource - Nutrition Guide for People Living with Myotonic Dystrophy

Webinar - Myotonic Dystrophy and the Brain: Causes, Effects and Treatment

Free Audio Books - Audible

Webinar - An Introduction to Mindfulness & Guided Meditation

Resource - Health Insurance Considerations for People Living with Myotonic Dystrophy in the United States

How Myotonic Dystrophy Affects Your Body - Body Systems Tool

Webinar - Multi Systemic and Cognitive Aspects of Myotonic Dystrophy Type 2

Webinar - Exercise for the DM Community

PREFER: Patient Preferences Survey

#MyGratitude Moments

Webinar - Gene Editing For DM

Cooking Video Contest Winners!

Resource - Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy

Webinar - Beyond Activities of Daily Living (ADLs): Strategies for Life Modifications, Socializing and More during COVID-19

Research Opportunity on COVID-19: A Survey from the University of Rochester Medical Center

Virtual Chair Yoga with Ellen Shapiro

MDF Digital Academy

MDF Friday Afternoon Webinar Series

Resource - Anesthesia Guidelines for Myotonic Dystrophy

Webinar - Caring for the Caregiver

Daily Mental Health Check - Greater Good Magazine

Webinar - Food Preparation for the DM Community

Webinar - How Common is DM in the United States? Findings from the Recent Prevalence Study

Creamy Roasted Carrot Soup - Cookie+Kate

Webinar - Sleep and Breathing Support for Myotonic Dystrophy during the COVID-19 Pandemic

Virtual Tours - Google Arts & Culture

Virtual Concerts - NPR

Webinar - Myotonic Dystrophy: An Overview and Update

MDF Digital Academy

Make Your own Face Covering - CDC

Learn at Home - Scholastic

Meditation - Mayo Clinic

Virtual Tours - US National Parks

Chair Yoga - Glass Half Full

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