Find all the archived links metioned in our Instagram posts below:
2021
Join us for Gentle Chair Yoga with Ellen!
Register for Ask-the-Expert: DM & Intimacy!
January Dispatch: DM News for the Myotonic Dystrophy Community.
Nutrition Guide for People Living with Myotonic Dystrophy
We're Growing - Development Manager Job Description
AMO Pharma Announces Expansion of Pivotal REACH-CDM Study in Congenital Myotonic Dystrophy
Support MDF in Your Year End Gift Giving!
Celebrating the Life of Hunter Lord
Watch Ask-the-Expert: COVID-19 & Vaccines Now!
Rally Support for US Congressional Resolution 336 Recognizing International DM Awareness Day!
The University of Iowa - An Anonymous Survey of Adults Who Are At Risk For Developing DM1
Support MDF for #GivingTuesday!
November Dispatch: DM News for the Myotonic Dystrophy Community
Adults Over 50 Living with DM1 Support Group
Session Recordings Now Available! - 2021 Virtual MDF Annual Conference
FDA Alert: Phillips Respironics Ventilators Recall
Meet the DM Drug Developers Webinar Series
Get Active & Healthy with Adaptive Yoga
Watch our International DM Awareness Day Program!
Rally Support for the International Myotonic Dystrophy Awareness Day US Senate Resolution
Ask-the-Expert: DM and Anxiety
AMO Pharma Awarded Innovation Passport for AMO-02 (Tideglusib)
Avidity Biosciences - Meet the DM Drug Developers
Manitoba, Canada, proclaims Sept 15 International Myotonic Dystrophy Awareness Day!
Avidity Biosciences - FDA Grants Orphan Drug Designation for AOC 1001
Family Day Happy Hour - July 24th
Caregiver Virtual Support Group Meeting
Harmony Biosciences announces Phase 2 Clinical Trial for DM1
Logo Announced - International Myotonic Dystrophy Awareness Day
Watch the Recording! Ask-the-Expert: Speech, Language, and Swallowing with DM
Welcome Kate Beck, Special Projects Manager
Meet the DM Drug Developers: ARTHEx Biotech
Watch Meet the DM Drug Developers - Lupin Neurosciences
Research Fellow Feature: Maya Gosztyla
Dr. Richard Moxley, Emeritus Member of the MDF Scientific Advisory Committee
Watch the Recording! Ask-the-Expert: Your Heart & DM
Community Logo Vote - International Myotonic Dystrophy Awareness Day
Watch the Recording! Meet the DM Drug Developers: Biogen & Ionis Pharmaceuticals
Join the May Movement Challenge 2021
Watch the Recording! Ask-the-Expert: Gastrointestinal Tract (GI)
Welcome Mike Knaapen, MDF's New Program Director!
International Myotonic Dystrophy Awareness Day - Logo Design Contest
Research Survey - Medicine packaging configuration and flavor profile preferences
Watch the Recording! - Meet the DM Drug Developers: Expansion Therapeutics
My Dispatch: DM News for the Myotonic Dystrophy Community - March 2021
Thank You Clare May! - MDF Support Group Facilitator
Watch "Ask-the-Expert: Respiratory Issues & DM"
Share Your Thoughts on the Future of MDF - Enter for a chance at a $100 Gift Card!
Research Survey - Medicine packaging configuration and flavor profile preferences
Webinar - Ask-the-Expert: Respiratory Issues & DM
International Myotonic Dystrophy Awareness Day - September 15th
International Myotonic Dystrophy Awareness Day - Logo Design Contest
A Journey with Movement & Exercise - Abilities Virtual Experience
Webinar - Meet the DM Drug Developers: AMO Pharma
Webinar - Ask-the-Expert: Exercise & Movement
MyDispatch - News for the DM Community - February 2021
DM1 Prevalence Study Published and Available
Caregiver Virtual Support Group Meeting - Feb 2021
Webinar - Meet the DM Drug Developers: Dyne Therapeutics
Webinar - MDF Advocate Training - Feb 2021
MDF 2020 Above & Beyond Award: Angie Wiggans
Webinar - Ask-the-Expert Series
Webinar - Meet the DM Drug Developers
My Dispatch: News for the DM Community - January 2021
MDF is Hiring! - Program Director
mRNA Vaccines with Dr. John D. Lueck via SF Quarantine
Positive Thinking - Mayo Clinic
Resource - Myotonic Dystrophy: Find a Doctor / Specialist
Genetic Treatment Plus Exercise Reverses Fatigue in Mice with Muscle Wasting Disease
2020
Meet the DM Drug Developers: AMO Pharma
COVID-19 Vaccines and the DM Community
Webinar - DM Strength Training with Rachel Kahn (Part 4 of 4)
Webinar - DM Strength Training with Rachel Kahn (Part 3 of 4)
Donate Towards Myotonic Dystrophy Care and a Cure
Webinar - DM Strength Training with Rachel Kahn (Part 2 of 4)
Get Ready for #GivingTuesday on December 1st!
Webinar - DM Strength Training with Rachel Kahn (Part 1 of 4)
Inspector General Warns About New Social Security Benefit Suspension Scam
Resource - Upcoming Virtual Support Groups
My Dispatch: News for the DM Community - November 2020
MyDispatch - DM News for the Myotonic Dystrophy Community!
Session Recordings from the MDF 2020 Virtual Conference!
Ingraham Family Story - How a Couple that Dreamed of Travel Found a Way Around DM
Myotonic Dystrophy Grant Opportunities
Webinar - Digital Academy - DM Video Catalog
What does the Myotonic Dystrophy Foundation Mean to You?
Community Advocate Participates in 3rd PRMRP Review
Resource - The Guide for Adults Affected by Juvenile-onset Myotonic Dystrophy and their Caregivers
Learn about MDF's incredible Support Group Facilitators
Myotonic Dystrophy Foundation Brand Refresh
Resource - Anesthesia Quick Reference Guide - Share it with your clinician and anesthesiologist!
50 Things to Do at Home in the Summer (That Don’t Require Any Outdoor Space)
Sign Up for Emails! - Monthly Dispatch Newsletter
DM Community Happy Hour - BYOB!
What does the Myotonic Dystrophy Foundation mean to you?
Get your story featured on Myotonic.org!
Bouquets to Art - de Young Museum
Resource - Exercise Guide for People Living with Myotonic Dystrophy
MDF Grassroots Fundraising Toolbox
My Dispatch: News for the Myotonic Dystrophy Community - July 2020
Care for Caregivers: Skills for Resilience Through Meditation & Mindful Movement
Webinar - An Introduction to Resources and Programs for Myotonic Dystrophy
Join the Myotonic Dystrophy Family Registry
Myotonic Dystrophy Drug Development Pipeline - Ben Porter at Newcastle University
PRMRP: Advocate for Myotonic Dystrophy Research Funding!
A Mother's Story - Elizabeth Florence
Healthy Recipes - American Heart Association
Webinar - Friday Afternoon Webinar Recordings
Five Ways to View Coverage of the Coronavirus - American Psychological Association
Overnight oats 4 ways - Kaiser
Resource - Nutrition Guide for People Living with Myotonic Dystrophy
Webinar - Myotonic Dystrophy and the Brain: Causes, Effects and Treatment
Webinar - An Introduction to Mindfulness & Guided Meditation
How Myotonic Dystrophy Affects Your Body - Body Systems Tool
Webinar - Multi Systemic and Cognitive Aspects of Myotonic Dystrophy Type 2
Webinar - Exercise for the DM Community
PREFER: Patient Preferences Survey
Cooking Video Contest Winners!
Research Opportunity on COVID-19: A Survey from the University of Rochester Medical Center
Virtual Chair Yoga with Ellen Shapiro
MDF Friday Afternoon Webinar Series
Resource - Anesthesia Guidelines for Myotonic Dystrophy
Webinar - Caring for the Caregiver
Daily Mental Health Check - Greater Good Magazine
Webinar - Food Preparation for the DM Community
Webinar - How Common is DM in the United States? Findings from the Recent Prevalence Study
Creamy Roasted Carrot Soup - Cookie+Kate
Webinar - Sleep and Breathing Support for Myotonic Dystrophy during the COVID-19 Pandemic
Virtual Tours - Google Arts & Culture
Webinar - Myotonic Dystrophy: An Overview and Update
Make Your own Face Covering - CDC