Community Favorite

"Hands" featuring Eric Hutchinson

Award-winning recording artist & Myotonic community member Eric Hutchinson released the song "Hands" on his new album "Modern Happiness" in partnership with Myotonic! Eric developed the song & video to share his family story & help raise awareness about DM & critically-needed funds for the Myotonic. Directed by Doug Thomsen and Adam Behrmann.

Living with DM: The Community Speaks

Myotonic community members speak about the impact that living with DM has on their lives.

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

DM & Anticipation, Part 1

Dr. Darren Monckton describes anticipation in myotonic dystrophy, the process by which the disease increases in severity as it is passed from generation to generation.

Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

Advocating for Myotonic Dystrophy Research - International Myotonic Dystrophy Awareness Day 2022

Presented on September 15, 2022.

Join MDF on International Myotonic Dystrophy Awareness Day on September 15th to learn how advocates can increase #myotonicDystrophy (DM) awareness, grow DM research funding, and advance policies to accelerate the approval of drugs to treat and eventually cure DM.

Industry Updates Part 2 - 2022 MDF Annual Conference

Presented on September 10, 2022.

Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Presenters include:

Industry Updates Part 1 - 2022 MDF Annual Conference

Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Presenters include: Harmony Biosciences, Avidity Biosciences, Dyne Therapeutics, GrittGene Therapeutics & AMO Pharma Ltd.

Myotonic Dystrophy Resources

 

Learn about the different resources that have been created for the Myotonic Dystrophy community! This presentation provides an introduction to help familiarize you with the resources and support options available for families affected by myotonic dystrophy.

The resources discussed during this video can be found at:

Industry Updates and Q&A - 2019 Myotonic Annual Conference

Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field, including companies new to the Myotonic Annual Conference. The industry updates are followed by the Q&A session where questions submitted throughout the conference are answered by a panel of DM Professionals.

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