Community Voices and Inspiration

Presented on September 10, 2022.

A celebration of the DM community, including the 4th Annual Kayla Vittek Memorial Award for Outstanding Community Advocate presented by Lisa Harvey-Duren, as well as the celebration of the Above and Beyond Award and Lifetime Achievement Award Recipients.

MDF is thrilled to congratulate and honor our three award winners for their uncontested commitment and service to the myotonic dystrophy community:

Family members, caregivers and researchers describe their experiences living with myotonic dystrophy and research advances creating hope for the future.

Myotonic is asking our community members to help educate their doctors about the care recommendations, and we'll show you how. Watch DM doctors and community members act out entertaining skits that will explain what to say to your doctors during your doctors visits. These skits will include a twist: affected community members will be the doctors and doctors are patients in these hilarious educational vignettes.

This interactive panel session was presented in a similar format to the Patient-Focused Drug Development meeting presented by MDF as a part of the 2016 MDF Annual Conference, and the CNS Endpoint Development discussion presented at the 2017 MDF Annual Conference.

A special tribute to Jeremy and Erica Kelly of Myotonic.

Watch "DM Heroes", a moving short film about a few heroes in the myotonic dystrophy community.