Disease Management

Dr. Dixon - Strategies For Managing Progression (2018 MDF Annual Conference)

Current strategies for managing disease progression and maintaining quality of life, including the latest in tools and resources with Missy Dixon, PhD, University of Utah.

Understanding SSA Compassionate Allowance for CDM

In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy was added to the Compassionate Allowance Program for Social Security Disability. Join us for an informational webinar with SSA representative Deborah Dennis, who will explain how this new development affects the DM community and what will change in the application process going forward.

DM and Dental Care: the Neglected Health Risk

Darcy Trill, RDHAP, mobile dental hygenist who specializes in the treatment of people with disabilities and special needs in their homes, provides a compelling overview of the risks of ignoring dental health for DM patients, and strategies for achieving and maintaining oral health. From the 2017 MDF Annual Conference.

DM and Mental Health: Managing Anxiety, Depression and Other Symptoms

Dr. Melissa Dixon of the University of Utah discusses mental health challenges and symptoms sometimes experienced by people living with DM, and strategies for coping with everything from depression to anxiety and 'brain fog' From the 2017 MDF Annual Conference.

Beyond General Anesthesia: Opiates and Other Pain Meds

Dr. Jacinda Sampson, joined by Dr. Ian Bowler, presents on the complications experienced by people living with myotonic dystrophy when they are subjected to anesthesia and, as importantly, other pain medications that can create similar complications and risks. This is critically important information for every DM family member and attending clinician to know. From the 2017 MDF Annual Conference.

Living Long, Living Well: A Current Approach to Palliative Care

On Monday, November 7, 2016, Myotonic hosted the webinar "Living Long, Living Well: A Current Approach to Palliative Care," with Dr. Anne Broderick and Dr. Laurie Gutmann.

Occupational Therapy (2016 Myotonic Annual Conference)

Watch Occupational Therapy, a video from the 2016 Myotonic Annual Conference.

Family Planning (2016 MDF Annual Conference)

Watch Family Planning, a video from the 2016 MDF Annual Conference.

Transitioning to Adulthood (2016 Myotonic Annual Conference)

Watch Transitioning to Adulthood, a video from the 2016 Myotonic Annual Conference.

Pulmonary Considerations Session

Watch Pulmonary Considerations, a video from the 2016 MDF Annual Conference.

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