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If you are living with DM1 or DM2, or are the caregiver of an adult or child with the disease, we invite you to join us for a group conversation to help shape the future of MDF. The conversations will run for 60 - 90 minutes and space is limited. 

MDF wishes Clare May and her family all the best after 14 years as a phenomenal support group facilitator! She not only provided her home as the meeting site, but dedicated herself to growing the group further through the local clinic and by word of mouth.

MDF is proud to announce Benjamin M. Kidd as one of MDF UK’s 2021 Research Fellowship Recipients! Kidd's project, “Brain Choroid Plexus Dysregulation and Cerebral Atrophy in DM1,” will use several mouse genetic models of DM1 with the intention to identify novel and accessible cell targets and pathways for effective myotonic dystrophy therapies.

In honour of Rare Disease Day 2021, a global alliance of myotonic dystrophy-focused organisations have united to announce the declaration of International Myotonic Dystrophy Awareness Day to be observed each September 15th.

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