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Myotonic Dystrophy News

September 29, 2023

MDF Advocates Work to Secure Federal Myotonic Dystrophy Research Funding

On Thursday, September 7th, over 130 Myotonic Dystrophy Foundation advocates from 23 US states and five other countries visited Congress on Capitol Hill in Washington, D.C. to ask for more federal research funding for myotonic dystrophy. We blanketed Capitol Hill and completed over 100 congressional meetings, spreading awareness of the seriousness of myotonic dystrophy and the urgent need for treatments and a cure.

September 29, 2023

The World Glows Green in Celebration of International DM Awareness Day!

In honor of International Myotonic Dystrophy Awareness Day on September 15th, our incredible partners and community members from all around the world dressed for the occasion and lit their local and national monuments in green. This initiative increases DM visibility across communities and social media and made for some great photos!

June 23, 2023

Community Interview: Mindy Kim, Community Outreach Specialist

Since her myotonic dystrophy (DM) diagnosis in 2010, Mindy has been very active in the DM community. Her current roles include Support Group Facilitator for North & South Carolina and Supportive Facebook Chat Facilitator. Despite her already significant involvement in the DM community, Mindy Kim has decided that she has the capacity to do even more!

June 23, 2023

Welcome Elias Trevino, Administrative Volunteer

MDF is pleased to introduce our new office volunteer, Elias Trevino! After decades of work in the chronic disease nonprofit space as a Vice President of Operations, and having volunteered at numerous charity organizations during his life, Elias brings a tremendous skill set to help move MDF’s mission forward.

May 25, 2023

Research Grant Feature: Melissa Hale, PhD

MDF is proud to announce Melissa Hale, PhD of Virginia Commonwealth University, Richmond, Virginia, US as one of MDF's 2023 Early Career Research Grant Recipients!

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Caregivers Only: Maintaining Intimacy