Programs and Events

In Memory of Shannon Lord, MDF Founding Chairman

It is with great sadness and heavy hearts that the MDF mourns the passing of our founding chairman, Shannon Lord, who passed away on June 4, 2013.

MDF 2012 Annual Conference A Big Success

It's a wrap! A sold-out gathering of over 300 DM families, researchers, medical professionals and vendors from the U.S., Canada and countries as far-flung

Margaret Bowler Carries the Olympic Torch for Myotonic Dystrophy

When the Olympic Torch blazes across the UK on its way to the London 2012 Olympics, Margaret Bowler, founder and National Coordinator of the Myotonic Dystrophy Support Group (MDSG), will be one of the 8,000 inspirational

© Myotonic Dystrophy Foundation. All rights reserved.